Content Note:
This post discusses chronic illness, disability, medical trauma, pain, migraines, mobility struggles, emotional overwhelm, and the realities of navigating medically complex life. Please take care of yourself while reading. š
Welcome to The Crippled Cryptid: Saturday Health Updates.
This is your gentle heads up before we begin.
These posts talk openly about chronic illness, disability, medical trauma, hospital visits, symptoms, and the unfiltered reality of living in a body that doesnāt always cooperate. Some weeks are soft reflections. Some weeks are heavy. Please check in with yourself before reading and come back when youāre in the right headspace.
No one will ever judge you for skipping a post here.
We understand that things get heavy, especially in spaces like this.
If youāre new here, hi. Iām Sky.
Professional cryptid.
Unwilling amateur cyborg.
Occasional chronic illness and disability advocate.
Medically complex enough to make my chart look like a horror anthology. I cope with sarcasm, stubborn hope, whatever snacks survived the week, and a concerning amount of coffee.
Most days are lived inside a haunted meat suit with a questionable warranty and a long-standing feud with my nervous system. I spend a lot of time in Bed Jailā¢, but Iām rarely alone thanks to Luna, my medical alert service dog.
Guardian. Enforcer. Tiny chaos gremlin with a medical degree she absolutely gave herself.
Sheās the voice that says, āHey. Sit down.ā
And when I ignore her, she upgrades to:
āMumther, we are NOT negotiating with your bad decisions today.ā
I like to joke that sheās the sassiest spirit guide there is, but when youāre a cryptid who is notoriously talented at ignoring red flags from your own body, you need a spirit guide with teeth.
And then thereās M&M.
My Player 2. My soft place to land. The person who shows up with ginger ale, soup, and the kind of quiet strength that keeps the world from tipping sideways when my body decides to startle everyone. She gives the 90% when I only have 10%, and reminds me that survival is still a team effort.
This space is for chronic illness without inspiration porn.
Disability without apologies.
Honesty without pretending itās always neat or hopeful or easy.
There will probably be dog hair involved.
If youāve been here before, welcome back.
If youāre new, take a breath. You donāt have to prove anything to exist here.
Welcome to the Lunatic CafĆ©. āš
Saturday Health Update: A Week of Big Emotions & Being Mobile Again
This week has been⦠a lot.
And I know youāve already heard some of it from Luna, and a little of it from me, but I can finally say it out loud now:
I didnāt expect most of this to happen.
I didnāt expect to get a car this week.
I didnāt expect to suddenly have pieces of my independence handed back to me after spending so long structuring my life around not having them.
And even though thatās a beautiful thing, it didnāt arrive gently.
It came with leg pain from all the standing around.
Headaches from stress and weather swings.
Emotional whiplash from paperwork, waiting, adrenaline crashes, and trying to process something my nervous system almost doesnāt know how to trust yet.
Because this isnāt just āwe got a car.ā
This is:
I can grocery shop again.
Not maybe grocery shop.
Not hope Instacart gets the order right this time.
Not calculating delivery fees versus energy levels versus what we can survive without for another week.
It means walking through a store and making sure our family actually gets the things we need. Not getting emotionally attached to the idea of something before itās in our hands, and then having to apologize for Instacart not bringing it.
It means choosing our own produce.
It means not feeling trapped by transportation logistics every single time we need shampoo, prescriptions, or soup ingredients.
And that sounds so ordinary to some people.
But disability has a way of turning ordinary things into sacred things.
Mobility changes your world.
Access changes your world.
Choice changes your world.
And I donāt think I realized how much grief Iād quietly wrapped around losing those things until pieces of them started returning to me.
I caught myself standing in a grocery aisle too long this week just because I could.
Not because I was overwhelmed.
Not because I forgot what I needed.
Just because I realized nobody was rushing me.
Nobody was waiting on me.
Nobody was deciding whether I got to come back another day.
And that feeling hit harder than I expected.
Disability can make spontaneity feel mythical.
Like a creature you only hear rumors about in old stories.
š¾ Luna Note:
Mumther says āquick errand.ā
This is propaganda.
So yes.
Thereās joy here.
But thereās grief tangled into the joy too.
And exhaustion.
And that strange emotional hangover that comes after surviving in āhard modeā for so long that your body doesnāt know what to do with relief once it finally arrives.
Pair all of that with trying to schedule Lunaās spay appointment, juggling pharmacy runs, handling errands, and existing through whatever cursed weather roulette the Midwest keeps spinning right now, and my nervous system has basically become a Victorian woman dramatically fainting onto a chaise lounge.
The Midwest weather has also apparently decided to discover mood swings as a competitive sport.
One minute itās spring.
The next minute my joints are forecasting biblical events.
The migraines have been loud this week.
The headaches have been stubborn.
The temperature swings have been kicking my ass in steel-toed boots.
But even with all of that?
Life feels different now.
Because for the first time in a long time, I have options again.
Before this, if I had access to a ride, I had to go right then.
Didnāt matter if I was flaring.
Didnāt matter if I was exhausted.
Didnāt matter if my body was waving red flags like a haunted lighthouse.
If transportation was available, that was the moment. Otherwise, it became delivery fees, Uber costs, waiting, or simply going without.
Thatās how a lot of disabled people end up living.
Not because we want to.
Because access is unpredictable.
But now?
Now I can decide:
āActually, I donāt want to do this today.ā
And that tiny sentence feels revolutionary.
š¾ Luna Note:
The orange Jeep has many important responsibilities:
- Grocery acquisition
- Pharmacy quests
- Pup cup retrieval
- Preventing Mumther from trying to walk through a migraine ājust real quickā
Life is weird now.
But itās weird in a really good way.
And for once, the future doesnāt feel like a locked door.
It feels like something cracked open just enough to let light through.
Sometimes healing isnāt about becoming who you were before.
Sometimes itās about finally building a life your body can actually survive inside.
š¾ Luna Note:
I personally believe if Mumther buys too many things at Target, she should be legally required to sit down afterward.
This is called healthcare.
If something here hit close to home, youāre not alone.
If you stayed anyway, thank you.
You donāt have to earn your place here.
Before you go, a soft little check-in from the Lunatic CafƩ:
š Take your meds if itās time.
š§ Drink some water.
š Eat something small, even if itās just a few bites.
No gold stars required.
Just a reminder from one haunted meat suit to another.
-Sky
Ā© The Crippled Cryptid
Disability. Honesty. Survival without the performance.
š https://linktr.ee/skylanarissa
No pressure to donate. Reading, sharing, and existing alongside me is already enough.
If you want to support the long, unglamorous work of survival and mobility:
š https://www.gofundme.com/f/support-skys-journey-to-health-and-mobility
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